Australians with Terminal Illnesses Caught in Funding Battle Between States and NDIS

Australians with Terminal Illnesses Caught in Funding Battle Between States and NDIS

What can be done to ensure that Australians with terminal illnesses receive the support they require without being caught in a funding battle?

Australians with terminal illnesses are facing uncertainty as state governments and the National Disability Insurance Scheme (NDIS) clash over who should provide funding for their disability supports.

Australians with Terminal Illnesses Caught in Funding Battle Between States and NDIS

Brain cancer patients, among others, are being told by the NDIS that their needs would be better met through state-funded palliative care services rather than the NDIS. This has caused distress and frustration for patients and their families who are seeking appropriate disability supports to continue living at home.

The NDIS has denied claims that it has tightened eligibility and expressed concern over the gaps that have emerged in support for those with palliative care needs. Applications from people citing terminal illness as their primary disability have doubled in recent months.

Experts argue that there is a lack of clarity regarding who should bear the expense of disability supports for those with lifelong impairments caused by diseases like cancer. While the NDIS is responsible for funding disability supports, including care and home modifications, for people with lifelong impairments, the states are required to provide palliative care services.

Anne-Marie Carmody and Glenn Downes are just two examples of individuals who have been caught in the funding battle between the NDIS and the states. Carmody, a former nurse, has had two NDIS applications rejected and is struggling to access the support she needs. Downes, an oncology nurse, was initially denied in-home support by the NDIS and remained in the hospital for months while seeking a review of the decision.

State governments have expressed their disappointment with the NDIS’s approach to terminally ill patients. They claim that patients who require NDIS supports for discharge are being directed to seek palliative end-of-life care instead. Palliative Care Australia has also reported an increase in the number of patients being denied disability support.

It is crucial for the NDIS and state governments to work together to resolve this issue and ensure that people with life-limiting illnesses receive the appropriate supports. Time is of the essence for these individuals, and delays in accessing necessary care can have a significant impact on their quality of life.

Australians with Terminal Illnesses Caught in Funding Battle Between States and NDIS

  • Brain cancer patients are being directed towards state-funded palliative care rather than the NDIS.
  • Experts call for greater clarity on funding responsibilities.
  • Patients like Anne-Marie Carmody and Glenn Downes are struggling to access the support they need.
  • State governments express concern over changes in NDIS decision-making.
  • Palliative Care Australia reports increased barriers for patients seeking disability support.

The funding battle between state governments and the NDIS has left Australians with terminal illnesses in a state of limbo. Clarity is needed regarding who should fund disability supports for individuals with lifelong impairments caused by illnesses like brain cancer. The NDIS must fulfill its responsibility to provide appropriate support, while state governments need to ensure that palliative care services are accessible. Collaboration is crucial to ensure that people with life-limiting illnesses receive the assistance they need without unnecessary delays.

Australians with Terminal Illnesses Caught in Funding Battle Between States and NDIS

By John Powell

John Powell is a general journalist with a strong focus on national politics. He pursued his studies at the University of Melbourne, where he honed his journalistic skills. With a keen interest in the political landscape, John has become a notable figure in reporting on national politics. His insightful coverage and analysis have garnered attention and respect from both colleagues and readers. With an eye for detail and a dedication to uncovering the truth, John continues to provide informed and balanced reporting on key political issues, making him a valuable asset in the field of journalism.